My recent announcement comes with so many emotions. I am excited, nervous, but most of all hopeful. 2019 marks 10 years since I began blogging on TeenCP, and it almost feels like another lifetime. I was a teenager in all regards–uncertain of everything, uncomfortable with my body. I recounted the many moments–good and ugly–in which … [Read more…]
Hi! If you are reading this, I probably sent you over here to read about a few things that might help with this new transition. 🙂 Here are just some stream-of-consciousness notes I had while thinking this through for my friend, Eabha. If you wear the ExoSym and would like to contribute some notes, please … [Read more…]
Hi everyone, I am equally nervous & excited to put this out there today–I am trying to organize a CP event to take place early next year and it only makes sense to start with your feedback. I am hoping you can take a look at the survey below & offer up your (anonymous) thoughts! … [Read more…]
EXOSYM + CEREBRAL PALSY WATCH HERE! Today is the last day of #cerebralpalsyawareness month & i didn’t even plan on having this video ready in time–how perfect! i hope you find this video useful, i had a lot of fun making it for you all! please feel free to share & tag your CP peeps! Below are … [Read more…]
Hi All, I’ve been meaning to get this up on the blog! A few weeks ago, I had the wonderful opportunity to talk with Gale Straub, podcaster and founder of She Explores , an amazing online community and resource that highlights the experiences of women in the outdoors. We talked about everything from being identical twins, … [Read more…]
Lately, I’ve often felt uninspired to write here because I seem to be on my computer and phone every day for graduate coursework & I am burnt out on screen time! I am sure many of you can relate, so I hope you don’t hold it against me. For what it’s worth, I love how … [Read more…]
World CP Day is almost here! Friday, October 6th 2017 worldwide founded & beginning in Sydney Australia! World CP Day can be a very personal or public thing, it is up to you! For me, it is an opportunity to recognize what I have overcome, what I have achieved, and how I have grown because … [Read more…]
Who is Liftware? What is The Level? I was recently approached by Verily to review their self-leveling utensil for people living with limited hand or arm mobility, Liftware Level. I intentionally didn’t do a lot of research on the device beyond the main website as I wanted to have a genuine first impression of the … [Read more…]
Some days, it’s like I’ve just gone down under a really big wave, but I didn’t go down deep enough…. instead of the smooth quiet break above me, I am tossed around; gasping for air! only to be spit out by aftermath of the wave that just was. Of the day that just was. My … [Read more…]
Sometimes I find myself using less positive words such as can’t, but, or don’t in regard to the things life brings with cerebral palsy. Often it is only in my mind, but sometimes I’ll say it out loud– where I notice it more. I catch myself almost instantly in response to “well what about these … [Read more…]