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CEREBRAL PALSY STRONG

THE STORY OF US, THE STORY OF NOW

January 8, 2019 by Katy Fetters

My recent announcement comes with so many emotions. I am excited, nervous, but most of all hopeful. 2019 marks 10 years since I began blogging on TeenCP, and it almost feels like another lifetime. I was a teenager in all regards–uncertain of everything, uncomfortable with my body. I recounted the many moments–good and ugly–in which … [Read more…]

Posted in: CP Social Tagged: CEREBRAL PALSY, CEREBRAL PALSY AWARENESS, CEREBRAL PALSY STRONG, CP, DISABILITY, DISABILITY AWARENESS, DISABILITY IS DIVERSITY, STORYTELLING

EXOSYM NEWBIE TIPS

June 19, 2018 by Katy Fetters Leave a Comment

Hi! If you are reading this, I probably sent you over here to read about a few things that might help with this new transition. 🙂 Here are just some stream-of-consciousness notes I had while thinking this through for my friend, Eabha. If you wear the ExoSym and would like to contribute some notes, please … [Read more…]

Posted in: ExoSym Tagged: BECOMING BIONIC, BIONIC, BODY, BRACE, CARBON FIBER, CEREBRAL PALSY, CEREBRAL PALSY AWARENESS, CEREBRAL PALSY STRONG, COMMUNITY, CPSTRONG, DISABILITY, EXOSYM, EXOSYMPLYAMAZING, HANGER CLINIC, HEMIPLEGIA

LET’S GO IRL: CEREBRAL PALSY EVENT QUESTIONNAIRE

April 3, 2018 by Katy Fetters Leave a Comment

Hi everyone, I am equally nervous & excited to put this out there today–I am trying to organize a CP event to take place early next year and it only makes sense to start with your feedback. I am hoping you can take a look at the survey below & offer up your (anonymous) thoughts! … [Read more…]

Posted in: Announcements, Cerebral Palsy Tagged: CEREBRAL PALSY, CEREBRAL PALSY AWARENESS, CEREBRAL PALSY STRONG, COMMUNITY, CP, CPSTRONG, DISABILITY

EXOSYM + CP VIDEO

March 31, 2018 by Katy Fetters Leave a Comment

EXOSYM + CEREBRAL PALSY WATCH HERE! Today is the last day of #cerebralpalsyawareness month & i didn’t even plan on having this video ready in time–how perfect! i hope you find this video useful, i had a lot of fun making it for you all! please feel free to share & tag your CP peeps! Below are … [Read more…]

Posted in: Cerebral Palsy, ExoSym, Resources & Education Tagged: ADAPTIVE, ADAPTIVE FITNESS, AFO, BECOMING BIONIC, BIONIC, BODY, BRACE, CARBON FIBER, CEREBRAL PALSY, CEREBRAL PALSY AWARENESS, CEREBRAL PALSY STRONG, CHAS MCCARTY, CONGENITAL CONDITIONS, CP, CP AWARENESS MONTH, CPSTRONG, DISABILITY, DISABILITY IS DIVERSITY, EXOSYM, HANGER CLINIC, HEMIPLEGIA, I AM ADAPTIVE, ORTHOTICS, WHAT CP LOOKS LIKE

SHE EXPLORES PODCAST FEATURE!

December 10, 2017 by Katy Fetters Leave a Comment

Hi All, I’ve been meaning to get this up on the blog! A few weeks ago, I had the wonderful opportunity to talk with Gale Straub, podcaster and founder of She Explores , an amazing online community and resource that highlights the experiences of women in the outdoors. We talked about everything from being identical twins, … [Read more…]

Posted in: Announcements Tagged: CEREBRAL PALSY, CEREBRAL PALSY AWARENESS, CEREBRAL PALSY STRONG, COMMUNITY, CONGENITAL CONDITIONS, CPSTRONG, DISABILITY, DISABILITY IS DIVERSITY, EXOSYM, MACHU PICCHU, OVERLAND, SHE EXPLORES, TRAVEL WITH DISABILITY, WOMEN WHO TRAVEL

COMING TO TERMS EVERYDAY WITH MY BODY

November 2, 2017 by Katy Fetters Leave a Comment

Lately, I’ve often felt uninspired to write here because I seem to be on my computer and phone every day for graduate coursework & I am burnt out on screen time! I am sure many of you can relate, so I hope you don’t hold it against me.  For what it’s worth, I love how … [Read more…]

Posted in: Cerebral Palsy Tagged: ACCEPTANCE, AS YOU ARE, CEREBRAL PALSY, CEREBRAL PALSY AWARENESS, CEREBRAL PALSY STRONG, COMING TO TERMS, COMMUNITY, CONGENITAL CONDITIONS, CP, CPSTRONG, DISABILITY, DISABILITY AWARENESS, DISABILITY IS DIVERSITY, EXOSYM, SELF ACCEPTANCE, SELF LOVE, SELF WORTH, THE BODY, WHAT CP LOOKS LIKE

WORLD CP DAY

October 3, 2017 by Katy Fetters Leave a Comment

World CP Day is almost here! Friday, October 6th 2017 worldwide founded & beginning in Sydney Australia! World CP Day can be a very personal or public thing, it is up to you! For me, it is an opportunity to recognize what I have overcome, what I have achieved, and how I have grown because … [Read more…]

Posted in: Cerebral Palsy, Resources & Education Tagged: CEREBRAL PALSY, CEREBRAL PALSY AWARENESS, CEREBRAL PALSY FOUNDATION, CEREBRAL PALSY STRONG, CONGENITAL CONDITIONS, CONSUMER SAFETY, CP, CPF, CPSTRONG, DISABILITY, DISABILITY IS DIVERSITY, HEMIPLEGIA, LIVE INDEPENDENTLY, MONOPLEGIA, MYTHS ABOUT CP, SPASTIC DIPLEGIA, SPASTIC QUADRIPLEGIA, WHAT CP LOOKS LIKE, WORLD CP DAY

LIFTWARE LEVEL: [A TOOL FOR EATING WITH CEREBRAL PALSY]

September 27, 2017 by Katy Fetters Leave a Comment

  Who is Liftware? What is The Level? I was recently approached by Verily to review their self-leveling utensil for people living with limited hand or arm mobility, Liftware Level. I intentionally didn’t do a lot of research on the device beyond the main website as I wanted to have a genuine first impression of the … [Read more…]

Posted in: Announcements, Cerebral Palsy, Resources & Education Tagged: ADAPTIVE, ADAPTIVE TOOLS, ANUPAM PATHAK, CEREBRAL PALSY, CEREBRAL PALSY AWARENESS, CEREBRAL PALSY STRONG, CP, CPSTRONG, DESIGN, DISABILITY, DISABILITY IS DIVERSITY, DIVERSITY, EATING, HEMIPARESIS, HEMIPLEGIA, IAMADAPTIVE, INDEPENDENCE, INNOVATIVE TECHNOLOGY, LIFE WITHOUT LIMITS, LIFTWARE, LIFTWARE LEVEL, MOBILITY, MOTION STABLIZING, MOTOR SKILLS, PROSTHETIC, RANGE OF MOTION, SPONSORED, TECHNOLOGY, TECHNOLOGY & DESIGN, THE BODY, VERILY, WHAT CP LOOKS LIKE

CEREBRAL PALSY: LIVING WITH PAIN & FATIGUE

August 18, 2017 by Katy Fetters Leave a Comment

Some days, it’s like I’ve just gone down under a really big wave, but I didn’t go down deep enough…. instead of the smooth quiet break above me, I am tossed around; gasping for air! only to be spit out by aftermath of the wave that just was. Of the day that just was.  My … [Read more…]

Posted in: Cerebral Palsy Tagged: ACCEPTANCE, BECOMING BIONIC, BODY AWARENESS, CEREBRAL PALSY, CEREBRAL PALSY AWARENESS, CEREBRAL PALSY STRONG, CHRONIC PAIN, CONGENITAL CONDITIONS, CP, CPSTRONG, DISABILITY, EXERCISE, LIVING WITH PAIN, PAIN & FATIGUE, PAIN MANAGEMENT, SELF CARE, SLEEP

WHAT ‘CAN’T’ MEANS WITH CEREBRAL PALSY

June 22, 2017 by Katy Fetters Leave a Comment

Sometimes I find myself using less positive words such as can’t, but, or don’t in regard to the things life brings with cerebral palsy. Often it is only in my mind, but sometimes I’ll say it out loud– where I notice it more. I catch myself almost instantly in response to “well what about these … [Read more…]

Posted in: Cerebral Palsy, ExoSym Tagged: ACCEPTANCE, ACTIVE, ADAPTIVE FITNESS, AFO, BECOMING BIONIC, BIONIC, BLOG, BODY AWARENESS, BRACE, CAN'T, CARBON FIBER, CEREBRAL PALSY, CEREBRAL PALSY AWARENESS, CEREBRAL PALSY STRONG, COURAGE, CP, CPSTRONG, CPWARRIOR, DISABILITY, EXOSYM, FACING YOUR FEARS, FEAR, I AM ADAPTIVE, PMA, POSITIVE MENTAL ATTITUDE, SELF DOUBT, SELF LOVE, WHAT CP LOOKS LIKE
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