Let’s spread the word about World Cerebral Palsy Day this October 6th, 2019. “World Cerebral Palsy Day is a movement of people with Cerebral Palsy and their families, and the organisations that support them, in more than 75 countries. Our vision is to ensure that children and adults with Cerebral Palsy (CP) have the same … [Read more…]
Hi everyone, I am equally nervous & excited to put this out there today–I am trying to organize a CP event to take place early next year and it only makes sense to start with your feedback. I am hoping you can take a look at the survey below & offer up your (anonymous) thoughts! … [Read more…]
EXOSYM + CEREBRAL PALSY WATCH HERE! Today is the last day of #cerebralpalsyawareness month & i didn’t even plan on having this video ready in time–how perfect! i hope you find this video useful, i had a lot of fun making it for you all! please feel free to share & tag your CP peeps! Below are … [Read more…]
Lately, I’ve often felt uninspired to write here because I seem to be on my computer and phone every day for graduate coursework & I am burnt out on screen time! I am sure many of you can relate, so I hope you don’t hold it against me. For what it’s worth, I love how … [Read more…]
World CP Day is almost here! Friday, October 6th 2017 worldwide founded & beginning in Sydney Australia! World CP Day can be a very personal or public thing, it is up to you! For me, it is an opportunity to recognize what I have overcome, what I have achieved, and how I have grown because … [Read more…]
Who is Liftware? What is The Level? I was recently approached by Verily to review their self-leveling utensil for people living with limited hand or arm mobility, Liftware Level. I intentionally didn’t do a lot of research on the device beyond the main website as I wanted to have a genuine first impression of the … [Read more…]
Some days, it’s like I’ve just gone down under a really big wave, but I didn’t go down deep enough…. instead of the smooth quiet break above me, I am tossed around; gasping for air! only to be spit out by aftermath of the wave that just was. Of the day that just was. My … [Read more…]
Sometimes I find myself using less positive words such as can’t, but, or don’t in regard to the things life brings with cerebral palsy. Often it is only in my mind, but sometimes I’ll say it out loud– where I notice it more. I catch myself almost instantly in response to “well what about these … [Read more…]
I wrote this about a year ago for a friend but I think that now is the perfect time to publish it! This was also pre-exosym so I want you to know that you can still take on athletics without special aid, I did for many years! This week, I am gradually getting back into the gym … [Read more…]
It has been awhile since I have written a blog post, even anything at all! Now I have waited too long and I have too many thoughts ready to jump on the page. It is easy to become caught up in the ongoings of life after being away from several months but it is time … [Read more…]