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Cerebral Palsy

World CP Day + CPstrong

September 12, 2019 by Katy Fetters

Let’s spread the word about World Cerebral Palsy Day this October 6th, 2019. “World Cerebral Palsy Day is a movement of people with Cerebral Palsy and their families, and the organisations that support them, in more than 75 countries. Our vision is to ensure that children and adults with Cerebral Palsy (CP) have the same … [Read more…]

Posted in: Announcements, Cerebral Palsy Tagged: CEREBRAL PALSY, CEREBRAL PALSY AWARENESS, CP, CP ALLIANCE, CPARF, CPMOVEASONE, CPSTRONG, DISABILITY, WORLD CP DAY

LET’S GO IRL: CEREBRAL PALSY EVENT QUESTIONNAIRE

April 3, 2018 by Katy Fetters Leave a Comment

Hi everyone, I am equally nervous & excited to put this out there today–I am trying to organize a CP event to take place early next year and it only makes sense to start with your feedback. I am hoping you can take a look at the survey below & offer up your (anonymous) thoughts! … [Read more…]

Posted in: Announcements, Cerebral Palsy Tagged: CEREBRAL PALSY, CEREBRAL PALSY AWARENESS, CEREBRAL PALSY STRONG, COMMUNITY, CP, CPSTRONG, DISABILITY

EXOSYM + CP VIDEO

March 31, 2018 by Katy Fetters Leave a Comment

EXOSYM + CEREBRAL PALSY WATCH HERE! Today is the last day of #cerebralpalsyawareness month & i didn’t even plan on having this video ready in time–how perfect! i hope you find this video useful, i had a lot of fun making it for you all! please feel free to share & tag your CP peeps! Below are … [Read more…]

Posted in: Cerebral Palsy, ExoSym, Resources & Education Tagged: ADAPTIVE, ADAPTIVE FITNESS, AFO, BECOMING BIONIC, BIONIC, BODY, BRACE, CARBON FIBER, CEREBRAL PALSY, CEREBRAL PALSY AWARENESS, CEREBRAL PALSY STRONG, CHAS MCCARTY, CONGENITAL CONDITIONS, CP, CP AWARENESS MONTH, CPSTRONG, DISABILITY, DISABILITY IS DIVERSITY, EXOSYM, HANGER CLINIC, HEMIPLEGIA, I AM ADAPTIVE, ORTHOTICS, WHAT CP LOOKS LIKE

COMING TO TERMS EVERYDAY WITH MY BODY

November 2, 2017 by Katy Fetters Leave a Comment

Lately, I’ve often felt uninspired to write here because I seem to be on my computer and phone every day for graduate coursework & I am burnt out on screen time! I am sure many of you can relate, so I hope you don’t hold it against me.  For what it’s worth, I love how … [Read more…]

Posted in: Cerebral Palsy Tagged: ACCEPTANCE, AS YOU ARE, CEREBRAL PALSY, CEREBRAL PALSY AWARENESS, CEREBRAL PALSY STRONG, COMING TO TERMS, COMMUNITY, CONGENITAL CONDITIONS, CP, CPSTRONG, DISABILITY, DISABILITY AWARENESS, DISABILITY IS DIVERSITY, EXOSYM, SELF ACCEPTANCE, SELF LOVE, SELF WORTH, THE BODY, WHAT CP LOOKS LIKE

WORLD CP DAY

October 3, 2017 by Katy Fetters Leave a Comment

World CP Day is almost here! Friday, October 6th 2017 worldwide founded & beginning in Sydney Australia! World CP Day can be a very personal or public thing, it is up to you! For me, it is an opportunity to recognize what I have overcome, what I have achieved, and how I have grown because … [Read more…]

Posted in: Cerebral Palsy, Resources & Education Tagged: CEREBRAL PALSY, CEREBRAL PALSY AWARENESS, CEREBRAL PALSY FOUNDATION, CEREBRAL PALSY STRONG, CONGENITAL CONDITIONS, CONSUMER SAFETY, CP, CPF, CPSTRONG, DISABILITY, DISABILITY IS DIVERSITY, HEMIPLEGIA, LIVE INDEPENDENTLY, MONOPLEGIA, MYTHS ABOUT CP, SPASTIC DIPLEGIA, SPASTIC QUADRIPLEGIA, WHAT CP LOOKS LIKE, WORLD CP DAY

LIFTWARE LEVEL: [A TOOL FOR EATING WITH CEREBRAL PALSY]

September 27, 2017 by Katy Fetters Leave a Comment

  Who is Liftware? What is The Level? I was recently approached by Verily to review their self-leveling utensil for people living with limited hand or arm mobility, Liftware Level. I intentionally didn’t do a lot of research on the device beyond the main website as I wanted to have a genuine first impression of the … [Read more…]

Posted in: Announcements, Cerebral Palsy, Resources & Education Tagged: ADAPTIVE, ADAPTIVE TOOLS, ANUPAM PATHAK, CEREBRAL PALSY, CEREBRAL PALSY AWARENESS, CEREBRAL PALSY STRONG, CP, CPSTRONG, DESIGN, DISABILITY, DISABILITY IS DIVERSITY, DIVERSITY, EATING, HEMIPARESIS, HEMIPLEGIA, IAMADAPTIVE, INDEPENDENCE, INNOVATIVE TECHNOLOGY, LIFE WITHOUT LIMITS, LIFTWARE, LIFTWARE LEVEL, MOBILITY, MOTION STABLIZING, MOTOR SKILLS, PROSTHETIC, RANGE OF MOTION, SPONSORED, TECHNOLOGY, TECHNOLOGY & DESIGN, THE BODY, VERILY, WHAT CP LOOKS LIKE

CEREBRAL PALSY: LIVING WITH PAIN & FATIGUE

August 18, 2017 by Katy Fetters Leave a Comment

Some days, it’s like I’ve just gone down under a really big wave, but I didn’t go down deep enough…. instead of the smooth quiet break above me, I am tossed around; gasping for air! only to be spit out by aftermath of the wave that just was. Of the day that just was.  My … [Read more…]

Posted in: Cerebral Palsy Tagged: ACCEPTANCE, BECOMING BIONIC, BODY AWARENESS, CEREBRAL PALSY, CEREBRAL PALSY AWARENESS, CEREBRAL PALSY STRONG, CHRONIC PAIN, CONGENITAL CONDITIONS, CP, CPSTRONG, DISABILITY, EXERCISE, LIVING WITH PAIN, PAIN & FATIGUE, PAIN MANAGEMENT, SELF CARE, SLEEP

WHAT ‘CAN’T’ MEANS WITH CEREBRAL PALSY

June 22, 2017 by Katy Fetters Leave a Comment

Sometimes I find myself using less positive words such as can’t, but, or don’t in regard to the things life brings with cerebral palsy. Often it is only in my mind, but sometimes I’ll say it out loud– where I notice it more. I catch myself almost instantly in response to “well what about these … [Read more…]

Posted in: Cerebral Palsy, ExoSym Tagged: ACCEPTANCE, ACTIVE, ADAPTIVE FITNESS, AFO, BECOMING BIONIC, BIONIC, BLOG, BODY AWARENESS, BRACE, CAN'T, CARBON FIBER, CEREBRAL PALSY, CEREBRAL PALSY AWARENESS, CEREBRAL PALSY STRONG, COURAGE, CP, CPSTRONG, CPWARRIOR, DISABILITY, EXOSYM, FACING YOUR FEARS, FEAR, I AM ADAPTIVE, PMA, POSITIVE MENTAL ATTITUDE, SELF DOUBT, SELF LOVE, WHAT CP LOOKS LIKE

HOW TO STRENGTH TRAIN WITH CEREBRAL PALSY

June 4, 2017 by Katy Fetters Leave a Comment

I wrote this about a year ago for a friend but I think that now is the perfect time to publish it! This was also pre-exosym so I want you to know that you can still take on athletics without special aid, I did for many years! This week, I am gradually getting back into the gym … [Read more…]

Posted in: Cerebral Palsy, ExoSym Tagged: ACCEPTANCE, ACTIVE, ADAPTIVE, ADAPTIVEATHLETE, AFO, BECOMING BIONIC, BIONIC, BLOG, BODY, BODY AWARENESS, BRACE, CEREBRAL PALSY, CEREBRAL PALSY AWARENESS, CEREBRAL PALSY STRONG, COMMUNITY, CONGENITAL CONDITIONS, CP, CPSTRONG, DISABILITY, DISABLEDATHLETE, EXERCISE, EXOSYM, EXOSYMPLYAMAZING, FITNESS, GYM, HOW TO, I AM ADAPTIVE, ORTHOTICS, PROSTHETICS, STRENGTH TRAINING

CEREBRAL PALSY: THE ONE THING THAT STILL MAKES ME FEEL SMALL

May 21, 2017 by Katy Fetters Leave a Comment

It has been awhile since I have written a blog post, even anything at all! Now I have waited too long and I have too many thoughts ready to jump on the page. It is easy to become caught up in the ongoings of life after being away from several months but it is time … [Read more…]

Posted in: Cerebral Palsy, ExoSym Tagged: ACTIVE, ADAPTIVE FITNESS, AFO, BEACH, BODY AWARENESS, CEREBRAL PALSY, CEREBRAL PALSY AWARENESS, CEREBRAL PALSY STRONG, COPING, CP, CPSTRONG, DISABILITY, EXERCISE, EXERCISING WITH DISABILITY, EXOSYM, EXOSYMPLYAMAZING, GAIT, GAIT PATTERN, I AM ADAPTIVE, NEVER GIVE UP, ORTHOTIC, PROSTHETIC, TEENCP, TRAVEL, TRAVELING WITH DISABILITY, WALKING, WHAT CP LOOKS LIKE, YOUNG ADULT DISABILITY

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