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BECOMING BIONIC

EXOSYM NEWBIE TIPS

June 19, 2018 by Katy Fetters Leave a Comment

Hi! If you are reading this, I probably sent you over here to read about a few things that might help with this new transition. 🙂 Here are just some stream-of-consciousness notes I had while thinking this through for my friend, Eabha. If you wear the ExoSym and would like to contribute some notes, please … [Read more…]

Posted in: ExoSym Tagged: BECOMING BIONIC, BIONIC, BODY, BRACE, CARBON FIBER, CEREBRAL PALSY, CEREBRAL PALSY AWARENESS, CEREBRAL PALSY STRONG, COMMUNITY, CPSTRONG, DISABILITY, EXOSYM, EXOSYMPLYAMAZING, HANGER CLINIC, HEMIPLEGIA

EXOSYM + CP VIDEO

March 31, 2018 by Katy Fetters Leave a Comment

EXOSYM + CEREBRAL PALSY WATCH HERE! Today is the last day of #cerebralpalsyawareness month & i didn’t even plan on having this video ready in time–how perfect! i hope you find this video useful, i had a lot of fun making it for you all! please feel free to share & tag your CP peeps! Below are … [Read more…]

Posted in: Cerebral Palsy, ExoSym, Resources & Education Tagged: ADAPTIVE, ADAPTIVE FITNESS, AFO, BECOMING BIONIC, BIONIC, BODY, BRACE, CARBON FIBER, CEREBRAL PALSY, CEREBRAL PALSY AWARENESS, CEREBRAL PALSY STRONG, CHAS MCCARTY, CONGENITAL CONDITIONS, CP, CP AWARENESS MONTH, CPSTRONG, DISABILITY, DISABILITY IS DIVERSITY, EXOSYM, HANGER CLINIC, HEMIPLEGIA, I AM ADAPTIVE, ORTHOTICS, WHAT CP LOOKS LIKE

CEREBRAL PALSY: LIVING WITH PAIN & FATIGUE

August 18, 2017 by Katy Fetters Leave a Comment

Some days, it’s like I’ve just gone down under a really big wave, but I didn’t go down deep enough…. instead of the smooth quiet break above me, I am tossed around; gasping for air! only to be spit out by aftermath of the wave that just was. Of the day that just was.  My … [Read more…]

Posted in: Cerebral Palsy Tagged: ACCEPTANCE, BECOMING BIONIC, BODY AWARENESS, CEREBRAL PALSY, CEREBRAL PALSY AWARENESS, CEREBRAL PALSY STRONG, CHRONIC PAIN, CONGENITAL CONDITIONS, CP, CPSTRONG, DISABILITY, EXERCISE, LIVING WITH PAIN, PAIN & FATIGUE, PAIN MANAGEMENT, SELF CARE, SLEEP

WHAT ‘CAN’T’ MEANS WITH CEREBRAL PALSY

June 22, 2017 by Katy Fetters Leave a Comment

Sometimes I find myself using less positive words such as can’t, but, or don’t in regard to the things life brings with cerebral palsy. Often it is only in my mind, but sometimes I’ll say it out loud– where I notice it more. I catch myself almost instantly in response to “well what about these … [Read more…]

Posted in: Cerebral Palsy, ExoSym Tagged: ACCEPTANCE, ACTIVE, ADAPTIVE FITNESS, AFO, BECOMING BIONIC, BIONIC, BLOG, BODY AWARENESS, BRACE, CAN'T, CARBON FIBER, CEREBRAL PALSY, CEREBRAL PALSY AWARENESS, CEREBRAL PALSY STRONG, COURAGE, CP, CPSTRONG, CPWARRIOR, DISABILITY, EXOSYM, FACING YOUR FEARS, FEAR, I AM ADAPTIVE, PMA, POSITIVE MENTAL ATTITUDE, SELF DOUBT, SELF LOVE, WHAT CP LOOKS LIKE

HOW TO STRENGTH TRAIN WITH CEREBRAL PALSY

June 4, 2017 by Katy Fetters Leave a Comment

I wrote this about a year ago for a friend but I think that now is the perfect time to publish it! This was also pre-exosym so I want you to know that you can still take on athletics without special aid, I did for many years! This week, I am gradually getting back into the gym … [Read more…]

Posted in: Cerebral Palsy, ExoSym Tagged: ACCEPTANCE, ACTIVE, ADAPTIVE, ADAPTIVEATHLETE, AFO, BECOMING BIONIC, BIONIC, BLOG, BODY, BODY AWARENESS, BRACE, CEREBRAL PALSY, CEREBRAL PALSY AWARENESS, CEREBRAL PALSY STRONG, COMMUNITY, CONGENITAL CONDITIONS, CP, CPSTRONG, DISABILITY, DISABLEDATHLETE, EXERCISE, EXOSYM, EXOSYMPLYAMAZING, FITNESS, GYM, HOW TO, I AM ADAPTIVE, ORTHOTICS, PROSTHETICS, STRENGTH TRAINING

MY FIRST HIKE WITH CEREBRAL PALSY + THE EXOSYM

April 19, 2017 by Katy Fetters Leave a Comment

I have been traveling in South America since January 2nd, 2017 with my boyfriend who was crazy enough to think up this adventure. He had already driven thousands of miles through Mexico and Central America by the time I joined, so he knew most of what we were in for luckily, for me. In his … [Read more…]

Posted in: ExoSym Tagged: ACTIVE, AFO, BECOMING BIONIC, BIONIC, BLOG, BODY, BRACE, CARBON FIBER, CERE, CEREBRAL PALSY, CEREBRAL PALSY AWARENESS, CONGENITAL CONDITIONS, CP, CPSTRONG, DISABILITY, EXERCISE, EXOSYM, EXOSYMPLYAMAZING, FITNESS, ORTHOTICS, PROSTHETICS

EXOSYM: WHY YOU SHOULD CARE IF YOU HAVE CEREBRAL PALSY: Part III

April 4, 2017 by Katy Fetters Leave a Comment

Phase Three: Becoming Bionic Days four and five of my first week in the device were kind of a blur in the sense that my dad had left to go back to work and I was left to decipher all of this on my own. I began to worry about the idea of taking on … [Read more…]

Posted in: ExoSym Tagged: ACCEPTANCE, ACTIVE, AFO, ANNOUNCEMENTS, ARTICLE, BECOMING BIONIC, BIONIC, BLOG, BRACE, CARBON FIBER, CEREBRAL PALSY, CEREBRAL PALSY AWARENESS, COMMUNITY, CONGENITAL CONDITIONS, CP, CPSTRONG, DISABILITY, EXERCISE, EXOSYMPLYAMAZING, FITNESS, HANGER CLINIC, IDEO, PROSTHETIC

EXOSYM: WHY YOU SHOULD CARE IF YOU HAVE CEREBRAL PALSY

March 4, 2017 by Katy Fetters Leave a Comment

“The carbon-fiber ExoSym brace(s) consist of a plate customized to the shape of the foot and two struts leading up the back of the calf, connecting to a support holster below the knee. As you step down, the brace redirects weight and energy away from the joints and stores it in the carbon fiber, kind … [Read more…]

Posted in: ExoSym Tagged: ARTICLE, BECOMING BIONIC, BIONIC, CARBON FIBER, CEREBRAL PALSY, CEREBRAL PALSY AWARENESS, CHAS MCCARTY, CONGENITAL CONDITIONS, CP, DISABILITY, EXOSYM, EXOSYMPLYAMAZING, HANGER CLINIC, IDEO, MENS JOURNAL, ORTHOTIC, PROSTHETIC, RYAN BLANCK, THE STORY OF MY LEG

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