Hi! If you are reading this, I probably sent you over here to read about a few things that might help with this new transition. 🙂 Here are just some stream-of-consciousness notes I had while thinking this through for my friend, Eabha. If you wear the ExoSym and would like to contribute some notes, please … [Read more…]
EXOSYM + CEREBRAL PALSY WATCH HERE! Today is the last day of #cerebralpalsyawareness month & i didn’t even plan on having this video ready in time–how perfect! i hope you find this video useful, i had a lot of fun making it for you all! please feel free to share & tag your CP peeps! Below are … [Read more…]
Some days, it’s like I’ve just gone down under a really big wave, but I didn’t go down deep enough…. instead of the smooth quiet break above me, I am tossed around; gasping for air! only to be spit out by aftermath of the wave that just was. Of the day that just was. My … [Read more…]
Sometimes I find myself using less positive words such as can’t, but, or don’t in regard to the things life brings with cerebral palsy. Often it is only in my mind, but sometimes I’ll say it out loud– where I notice it more. I catch myself almost instantly in response to “well what about these … [Read more…]
I wrote this about a year ago for a friend but I think that now is the perfect time to publish it! This was also pre-exosym so I want you to know that you can still take on athletics without special aid, I did for many years! This week, I am gradually getting back into the gym … [Read more…]
I have been traveling in South America since January 2nd, 2017 with my boyfriend who was crazy enough to think up this adventure. He had already driven thousands of miles through Mexico and Central America by the time I joined, so he knew most of what we were in for luckily, for me. In his … [Read more…]
Phase Three: Becoming Bionic Days four and five of my first week in the device were kind of a blur in the sense that my dad had left to go back to work and I was left to decipher all of this on my own. I began to worry about the idea of taking on … [Read more…]
“The carbon-fiber ExoSym brace(s) consist of a plate customized to the shape of the foot and two struts leading up the back of the calf, connecting to a support holster below the knee. As you step down, the brace redirects weight and energy away from the joints and stores it in the carbon fiber, kind … [Read more…]