Welcome to Cerebral Palsy Strong!
My name is Katy (Fetters) Gaastra & I started CPstrong in 2017 in order to evolve my presence online after I outgrew my blog called TeenCP. More importantly, I aim to continue to host a place to share stories about myself, others, and our experiences as young adults with cerebral palsy. I hope this blog will go beyond myself and my own understanding of CP as it affects everybody differently and we all have so much to learn from others with our disability.
Since 2009, as both active and passive participant in the online disability community I have come to understand we as humans go through times when we need to be empowered, seen, and heard—so it is with this blog that I encourage others to be bold and unafraid to write about what truths & realizations CP has brought them. Learn how to share your story on our social media here.
My goal is, and always will be to speak up; to remember that I have a voice when I feel small and that you do too! Moreover, to remind myself and others who have ever felt less than that these stories are important and are meant to be told. Others outside the disability community need to see that we are in control of our own narrative.
To help young adults with cerebral palsy (CP) make connections, find a sense of belonging, and build community with one another as we navigate adulthood with a physical disability.
We do that by:
-Featuring stories of real-life people with CP—which works to promote positive, more accurate representation of disabled lives in the media as well as foster a shared experience.
-Organizing community-led events that celebrate coming together and creating space for discussing challenges and opportunities that are important to the disability community
-Fostering awareness, education, and understanding around disability, CP Awareness Month, World CP Day and more.
I am an identical twin (born at 27 weeks, she does not have CP)
I have left hemiplegic CP
The device I wear is called an ExoSym
I am a newlywed—married to an amazing man who took me on an adventure of a lifetime—we camped/hiked/drove through most of South America in 2017 in a Toyota Land Cruiser. We traveled over 7,000 miles in 5 months.
I love ice cream
I love being close to the ocean; the outdoors & open spaces
I work as a brand strategist at Crispin Porter Bogusky, a pretty cool creative agency, and I learn something new about culture every day.
I am always thinking about what I want to do next…
Contact me: firstname.lastname@example.org